Sickle Cell Disease Archives

New non-profit Eloron seeks to raise awareness for Sickle Cell disease

January 27, 2022

Sickle cell anemia has exacted a heavy toll on the siblings of Bennie J. Morris, Sr. He lost his oldest sister, Lola in 1993 when she was just 39-years-old. On Halloween in 2019, his youngest brother, Aaron died of sickle cell. His youngest sister, Elizabeth, also suffers from sickle cell anemia. She celebrated her 59th… [Read More]

Are these 5 health conditions in your family tree?

November 25, 2021

The branches of your family tree bear much more than the years your grandparents were born. Knowing your family’s health history is an important factor in your health status. Some health conditions are more likely to be passed from generation to generation. Your family tree can shed light on your risks for these 5 conditions:… [Read More]

What every ‘Sickle Cell Warrior’ must know about their patient journey

September 30, 2021

As you try to maintain consistent wellness when dealing with sickle cell disease, it is imperative that you navigate the Patient Journey Roadmap by making five key stops to living the best life possible. Having a chronic illness such as sickle cell disease means understanding all the ways you must take control of your life… [Read More]

World Sickle Cell Day shines light on disease impact in minority communities

June 17, 2021

Sickle cell disease impacts thousands every year, and people of color make up a large percentage of those affected. But more than 100 years after its discovery, treatment hasn’t come very far. So far, only three medications approved by the Food and Drug Administration are on the market. Juneteenth is recognized as the day slaves… [Read More]

At last, two new meds to fight sickle cell disease

August 13, 2020

For the first time in 20 years, the FDA has approved two transformative new treatments for the approximately 100,000 people with sickle cell disease (SCD). One new med will prevent the excruciating pain of SCD while the other is formulated to prevent organ damage. “After decades of waiting, there is now a treatment option that… [Read More]

Sickle cell patient gives the gift of music at Ascension St. Joseph

December 19, 2019

By Karen Stokes Beautiful music has a calming effect and calm is important to hospital health care providers and patients. Jonathan Hood, a sickle cell patient, is giving back to the hospital where he spent time by sharing his talent playing piano in the lobby at Ascension St. Joseph’s Hospital. “The reason I play at… [Read More]

Sickle Cycle is on the rise!

June 27, 2019

Charlotte Curtis was diagnosed at birth with Sickle Cell Disease (SC). Sickle Cell Disease is an inherited blood disorder that blocks the flow of oxygen throughout the body which causes many complications, including organ damage. Growing up, Charlotte was active in the Sickle Cell community and had a desire to bring more awareness about the… [Read More]

What you need to know about sickle cell disease

October 11, 2018

Sickle cell disease is a blood disorder that’s passed down from parents to their kids. Babies are born with sickle cell disease when they inherit 2 abnormal genes (one from each parent). These genes cause the body’s red blood cells to change shape. What sickle cell disease does to the blood Instead of moving through… [Read More]